rare diseases

Brain and Nervous System
December 8, 2017

Guillain-Barré syndrome – the peculiar disease that can affect anyone

This rare, yet serious syndrome is an autoimmune condition which attacks the body’s nervous system. Although you can be treated, the disease can be life-threatening if not managed in time. What causes Guillain-Barré syndrome? Guillain-Barré syndrome is thought to be caused by a problem with the body’s immune system. A healthy immune system attacks bacteria and viruses entering the body – but in this case, the immune system mistakes the nerves for “foreign objects”, attacking them too. This causes problems with the messages between the brain and nerves, and results in numbness and muscle weakness. A few other triggers for…
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General knowledge
February 26, 2016

Rare diseases: the real X-Men

“The greatest gift we have is to bear their pain without breaking and it comes from your most human part, hope.” X-Men: Days of Future Past. The movies present the X-Men as people with genetic mutations that give them superpowers. Although real world X-Men and – women exist, they would never describe their rare diseases as superpowers: (more…)
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Exercise, Fitness & Muscle
May 15, 2015

Cheating death with his dance-moves

A small boy walks onto the stage. The whole audience starts muttering: ‘Who is this kid?’ ‘How old is he – five!?’ ‘Where are his parents?’ ‘What is he going to do now?’ He freezes in the middle of the stage, and drops his head. The crowd falls silent. (more…)
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General knowledge
April 8, 2015

Overcoming the odds: Dealing with rare diseases

Stares. Whispers. Insulting comments. How would you feel if this was part of your everyday life? You’d probably feel miserable and angry, right? This is exactly what Lizzie Velasquez has been dealing with her entire life (more…)
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General knowledge
January 18, 2015

Strange, but true health factoids

So, you thought the minds of writers of medical TV shows had brought you all of the strangest medical facts and conditions on the planet? Think again! (more…)
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